I was surprised and honored to be asked to be a part of this video put together by the Cystic Fibrosis Foundation. It was shared with everyone in attendance at the North American CF Conference last week. Honestly, I felt uncomfortable having my face and my voice up on the big screen at such a large gathering with so many reknown people in attendance. But I knew I couldn’t turn down the chance to thank the scientists, researchers, and care teams for all they do every day to to improve the lives of my children.
I truly am so thankful to all those who go to work each and every day, committing their time and energy to finding new treatments for those affected by Cystic Fibrosis. I have so much hope that one day their efforts will uncover that long anticipated cure to this disease that threatens the life of my children and so many others.
And then I will finally be able to answer yes to that question that my child asks me ever so often, Yes! CF is finally gone away forever. 💜