As any of my faithful followers know, last year, Nathan participated in the Cystic Fibrosis Foundation Fundraiser called the Xtreme Hike. You can read more about that experience here. We raised almost $16,000 for the CFF through that event! This year, we are taking on more of a family event and participating in the CFF’s national fundraising event called Great Strides. It will involve a 5K walk around downtown Raleigh and Kelsie and Mackenzie will get to participate as well, which we are really excited about! I have set a lofty goal to raise $10,000 for the CFF through this event. And I am asking each of you to please consider donating to help our family achieve this goal.
As most of you know by now, CF is a genetic, chronic, life-long, and life-threatening disease that mainly affects the lungs and digestive systems. It is a progressive illness that is most dangerous in the lungs where it causes chronic infections and inflammation that can compromise one’s ability to breathe and lead to irreparable damage. The current life expectancy is in the late 30s and there is no cure. However, thanks to the work of many committed individuals over the past several decades, the life and prognosis of a person with CF is so much better than it used to be.
There are now many therapies available to us that we utilize every day to keep our girls as healthy as possible. Both Kelsie and Mackenzie take over 20 pills a day and do at least an hour of airway clearance every day daily plus breathing treatments. Even though this involves a lot of work on our part, we are beyond grateful that these therapies exist and are helping them to live a normal life for now. And we know that these drugs were first discovered because of the support from the Cystic Fibosis Foundation. Through it’s incredible work over the years, the CFF has changed the face of this disease and has offered so much hope to families just like ours.
For that reason, we are committed to helping the CF Foundation continue it’s work by participating in these fundraisers that provide the monetary resources they need to keep their life-saving research moving forward. You can be assured that this organization is utilizing their funds responsibly and in a meaningful way that will actually make a difference. I am confident that every dollar raised by the CF Foundation is used towards one goal of making the lives better for those affected by this disease. If you spend any time perusing the CFF website, you will soon learn of the great things they are doing for the CF community. And if you really dig deep, you will hear about some big things in the works that are getting us closer and closer to that much anticipated, one-time CURE! Our donations will only help to accelerate this research further.
I will admit that it is definitely a step out of my comfort zone to petition my friends, family, and acquaintances, both old and new, to give their hard earned money to support a cause they have likely never even heard of before they met us. However, besides taking care of our girls every day and praying for a cure, helping support the organization that provides the most promise for their future is all we know to do. We don’t want them to suffer one day at the hand of this disease. We don’t want them to experience how it feels to walk around every day struggling to get enough air to breathe comfortably. We don’t want to ever have to sit by their bedsides facing the unthinkable. We want them to lead a full and long life and cannot fathom seeing it be cut as short as this disease suggests.
While we clearly have a lot of hope in what the CFF is doing and are thankful for the great advancements they have been a part of, we know the work is far from done. So WE MUST do our part to help. And we are offering you the chance to do the same if you feel led.
Please do not feel pressured to give. We absolutely understand that not everyone is in a position to do so. However, if you can give, even a little, we would be forever grateful. If you would like to, there are a couple ways you can do so.
1) You can make a secure online donation via our fundraising page (all donations are 100% tax deductible). http://fightcf.cf
2) At that same link above, there is also a button where you can choose to mail in a donation. It will display a form for you to print and mail in with your check. You may also make a check out to the Cystic Fibrosis Foundation and just mail it to me at: 51 Plymouth Ct Pittsboro NC 27312 and we will send it in for you.
Thank you all so much for your continued support and encouragement!